After a nice dinner, Bekka went back to the PICU to find a grinning Ollie-Bear awaiting her return. He's tolerating the bi-pap reasonably well and even managed to work in a little binky time while they had the mask off to conduct the cough assist and before they placed it back on.
Too bad for the little guy that he can't do both at the same time :(
So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday.
How Can You Help?
Click on me for cute pictures!
Ollie's Tale
Ollie's Tale is a work in progress. We promise to update it as frequently as we can. Sometimes that may be daily or even hourly. Other times it may be weekly or even monthly. So, please be patient with us and check back often.
You can contact us at:
olliestale (at) gmail (dot) com
You can contact us at:
olliestale (at) gmail (dot) com
Swedish Proverbs
"Shared joy is a double joy; shared sorrow is half a sorrow."
"Friendship doubles our joy and divides our grief."
Blog Archive
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2009
(100)
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March
(27)
- Fingers Crossed!
- Silly Ollie!
- We need a bigger house....
- Happiness
- Disappointment
- Happy St. Patrick's Day!
- Busy Day
- Still Progressing Beautifully
- How smart is my boy?
- Teef!
- Shhhhh. Asweep...
- A Quick Post
- Three Cheers!
- An Update from the Mama
- Smiling Ollie
- Extubation is successful so far!
- Ollie is in PICU
- Small Update
- Surgery has begun
- Ollie is now in Pre-op
- A bit of info about tomorrow
- Thanks Amanda B!
- Surgery Time is 11:15am
- Case Manager
- Professional Portraits
- Surgery has been scheduled...
- Pre-Op Appointment
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March
(27)
SMA Sites
- Standard of Care in Spinal Muscular Atrophy
- University of Utah - Dr. Swoboda
- Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy
- Families of Spinal Muscular Atrophy
- Fight SMA
- SMA Foundation
- Angel Baby Foundation
- Claire Altman Heine Foundation
- The Jacob Isaac Rappoport Foundation
- The Jeffery Journey
- Muscular Dystrophy Association
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