Friday, April 30, 2010
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So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday.
How Can You Help?
Click on me for cute pictures!
Ollie's Tale
Ollie's Tale is a work in progress. We promise to update it as frequently as we can. Sometimes that may be daily or even hourly. Other times it may be weekly or even monthly. So, please be patient with us and check back often.
You can contact us at:
olliestale (at) gmail (dot) com
You can contact us at:
olliestale (at) gmail (dot) com
Swedish Proverbs
"Shared joy is a double joy; shared sorrow is half a sorrow."
"Friendship doubles our joy and divides our grief."
Blog Archive
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2010
(96)
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April
(22)
- Friday Night Twins' Birthday Update
- Babies are in the ICN and Bekka in Recovery
- Bekka back for c-section
- Contractions Update
- Contractions
- 25 Weeks, 1 Day and some Sweet, Sweet Kool-Aid
- Quick Update.....from Bekka!!
- Quick Update for Friday 4-23-2010
- Everything is Quiet
- Much Better Night and (so far) Uneventful Day
- Scary Night, OK Day
- Overnight Scare
- The Doctor has been Met and Other News
- Monday Afternoon - 4-19-2010
- Evening Update - 4-18-2010
- At WakeMed Raleigh - 4-18-2010 Update
- Afternoon Bekka Update 4-16
- Not a No News Morning
- No News Really is Good News
- Day 5 in the Hospital
- Twins, Hospitals and Amniotic Sacs
- Good News and Scary News
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April
(22)
SMA Sites
- Standard of Care in Spinal Muscular Atrophy
- University of Utah - Dr. Swoboda
- Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy
- Families of Spinal Muscular Atrophy
- Fight SMA
- SMA Foundation
- Angel Baby Foundation
- Claire Altman Heine Foundation
- The Jacob Isaac Rappoport Foundation
- The Jeffery Journey
- Muscular Dystrophy Association
Posts
Many good thoughts for all of you and lots of love being sent your way.
ReplyDeleteSending prayers from NC!!!
ReplyDeleteHelen/'Lucy'
My thoughts and prayers are with you all right now!.
ReplyDeleteI've been a quiet follower for a few weeks now (found your site through another SMA family). My twin nephews were born at 24 weeks, 3 days. Please know my thoughts and prayers are with you. Praying for healthy little ones and a safe delivery.
ReplyDelete-Laura
www.asherandjacobsfriends.com