Thursday, August 13, 2009

On Being Ollie's Daddy

Last week, on the night before Ollie's memorial, I couldn't sleep. I sat down with the laptop and began to put some thoughts on paper about what it was like being a dad and Ollie's dad in particular. Somehow, and I'm not really sure how, I made it through reading it at the service.

I had a lot of requests to post it and now almost a week later, I think I can do it. I hope you find it meaningful and that it sheds some light on our life with the little guy.

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Thoughts on being Ollie’s Daddy – August 7, 2009

Becoming a father is an interesting study in contrasts. My experience is that most men treat impending fatherhood with a mix of genuine excitement and a touch of wariness. I know I fell into that category. The wariness comes from two sources: 1) You instinctively know you are about to bring a being into your house that you think will compete with you for your wife’s affection (and is way WAY cuter) and 2) You are massively worried about screwing up.

The thing is – the first time you hold that little ball of warmth in your arms – every single worry and concern you might have had is gone – left right there in the birthing room. Now you are focused only on how you are going to provide the best life possible for this child and his beautiful mother.

The worries about making a mess of everything will come back – but you’ll find quickly that somehow, you manage to step right up and take care of each problem (with a little help from mommy and those wise and sage grandparents that have been there before).

So everything in your life is humming right along and all is good. Baby is growing by leaps and bounds and nursing like a champ and is clearly the cutest thing going in six counties. People are calling and emailing and dropping by “just to check in”. At the preschool, he’s two months old, only been there a week and already the teachers are wrapped around his tiny little pinky. Everyone he meets falls in love as he learns how to wield that big toothless grin like a battle axe of happiness.

Then a Mack truck drives through your living room and takes your life away. You noticed your child wasn’t physically developing quite like he should. You visit doctors and therapists, and then one day, while all alone, you figure out that your child is going to die. His beautiful mother is at work and you don’t want her to know yet, so you cry for 2 hours and sit rocking and hugging your little one railing against creation. Mommy comes home and you all 3 sit together holding each other and cry some more. A couple of weeks later, testing confirms your terrible suspicion and your life is upside down.

So now you have two choices: Give up and mope about, feeling awful (and you WILL do that at times – how can you not?) or get on with life and give your beautiful little son the absolute best and most comfortable life you and mommy can make for as long as you are going to have him.

So that’s what we did. That’s what our friends did. That’s what our family did and our nurses and doctors and EMTs.

Mommy and I lived for Oliver everyday. As time flew by, our little man was clearly getting weaker. Still, we awoke each day to see that smile and to see those eyes twinkle. Just one little Ollie grin was enough to make your day, a dozen grins were almost too much to bear, yet Ollie gave them constantly.

Life definitely became tough. It’s not right that you have to feed your child through a tube into his stomach and become proficient at medical techniques that no parent should even have heard of, much less ever expect to know – still that grin was there – a grin that extended from Ollie’s heart and shone from his entire face like a ray of happiness – that was enough to keep you going. Ollie was never angry and he was never sad. It’s like he knew that mommy and daddy needed help to get through this struggle. He couldn’t help physically, but if there was ever a person stronger in spirit, I’ve never met them in my time on this earth.

The world will be a little dimmer for all of us. We’ll have pictures, of course, but as powerful as they are, they cannot possibly do justice to the energy of a little boy that must have been an angel. We’ll make it though.

Being Ollie’s daddy was the best job in the world. And I miss him. I love you son.

10 comments:

  1. Man, Neil, I don't think I have ever, ever cried at a blog post but that was so ...

    well I can't put it into words. I'm glad you got to have the perfect job of raising your son if it was only for a while.

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  2. I am so glad to see your continued posts. Although Oliver is gone, you guys are still very much on your journey. Oliver is fine and well where he is, and it's his grieving parents who I wonder about, worry about, pray for... It's good to see you on here.

    -Beth Mears

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  3. You don't know me but a friend pointed me in the direction of your blog some months back when she was helping out with a fundraiser you were having for Ollie's expenses. I've stopped by occasionally for updates on Ollie's health ever since. I just came back from vacation to read that Ollie had passed. Again, I know you don't know me from Adam, but I just wanted to say how sorry I was for your loss. Your blog posts and pictures made Ollie a little part of my life and for that I thank you. He was a special little boy and you did a wonderful job of letting the world see some of that for the short time he was with you.

    Again, I'm sorry for you loss and I'll look for that extra bright star in the sky tonight and know that it is Ollie looking down over you and your entire family.

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  4. Neil,

    Thank you so much for posting this beautiful memorial for Ollie. Such amazing words written for such a precious boy. Ollie too was truly blessed...No child could have asked for better loving parents than you and Bekka..

    My thoughts are with you both,
    Natasha

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  5. Neil,

    I am glad that you shared that. It was the best thing a daddy could ever write about this baby :). I applaud you and Rebekka for being so strong and giving Ollie the best. I know he was happy and is there with you in spirit.
    Thank you for continuing your journey and sharing it with us.

    We miss you and love you guys.

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  6. We remember you in prayer daily. We are grateful for the opportunity to know you and your wonderful family. Thank you especially for sharing Ollie with the rest of us. We are still wearing our wrist bands. The UPS driver asked me about it today. He said he has seen them several places on his Pittsboro route. Word is getting "out there."

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  7. It has been 5 weeks today since we received that much dreaded phone call from Neil at 5:50 AM in the morning that we had lost our dear little "Ollie Bear". It was a call that we knew in our minds we would eventually receive, but had hoped in our hearts we would never receive. The time since that phone call has been difficult for all of us. Losing Ollie was a multiple blow to us as we hurt for our precious little Ollie; Neil and Rebekka; Grandpa Tim and Grandma Karla; Aunt Amanda and Uncle Philip, ourselves; as well as our extended families and friends. The past year was filled with both great joy as well as deep anguish. Ollie's situation has drawn us closer together as a family. We are extremely proud of the way Neil and Rebekka have dealt with Ollie's heartbreaking situation. We are also equally proud of Ollie's Aunt Amanda and Uncle Philip and Neil and Rebekka's many close friends who have stood by them during this difficult ordeal. We will always cherish the memory of our beautiful grandson in our hearts and minds. Ollie, we will always be your Nana and Papaw and one day soon, we will see you in Heaven.

    With all or our love,
    Nana & Papaw Mastin

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  8. Hi I've been crying for minutes on end... I just saw Ollie's slideshow and just read what you wrote. Thank you for sharing. We don't know each other... I wrote about 1/2 hour ago on your blog after seeing a picture of Ollie with the bipap (my 13 yr old niece uses one- she has mitochondrial disease).
    Your words about your son's spirit resonate in how I see my niece. Thank you again. Corri G.

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  9. Corri,

    Thank you for your nice comments and for taking the time to read our blog. If you haven't seen the book "Shelter From the Storm: Caring for a Child with a Life-Threatening Condition," I highly suggest it. It is readily available on Amazon. (Keep your tissues nearby, though, as it is not always easy to read.)

    I hope that you, your niece, and your family have a strong network of support. It is one thing that will make your journey more bearable.

    Best wishes,
    Rebekka

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