Ollie & Mackinley Meet

We had a "routine" visit at Duke today with Dr. Smith. He sees Oliver every month or so to monitor his progress. At this visit we also got to meet Joanne Mackey and Dr. Kishnani. They will be part of the team that will be running the clinical trial (CARNIVAL I) starting around June 23rd! We are excited and hopeful about this study. It's not a cure, but we hope it at least leads to some treatment options for kids with SMA.

After our appointment, we all went to visit Mackinley and his family. You can follow Mackinley's journey on his CaringBridge site. It was really cute to see Ollie and Mack lying beside each other. They really seemed to enjoy looking at one another. And little Mackinley had a LOT to say! We're not sure, but we think they may have been confirming their plans to take over the world. Or at least Duke Children's! Personally, I think they plan on doing it by flirting with all the ladies. =)

Neil and I had a nice visit with April, Kyli and Paige (who turns 6 years old on June 9th...she wants everyone to know). And we got to meet Brian as well. Please keep April, Brian, Mackinley and their family in your thoughts and prayers. Mackinley's g-tube surgery is scheduled for this Thursday, June 11th.