Saturday, June 20, 2009

Families of SMA - North and South Carolina Chapter Meeting

I got an email from Families of SMA last week with exciting news for families (and their support networks) living in North and South Carolina!

It read:
There is a meeting planned to get a North Carolina and South Carolina Familes of SMA Chapter up and running!

On June 27, 2009 from 12:30pm to 2:30pm

At the Downtown Sheraton in Raleigh, NC

For more information, please contact Jessica Adams at qst4it@earthlink.net

Obviously, Neil and I are planning on being there with our (large) support group. I'm so glad that it's after I get back from the conference since I'll have lots of information to share!

If you or someone you know is interested in attending the meeting, please contact Jessica Adams at the email address listed above.

Hope to see you there!!!!
Posted by Bekka at 8:06 PM

2 comments:

  1. HapplyImperfectJune 22, 2009 at 10:00 AM

    See you there!

    ReplyDelete
  2. LindaJune 29, 2009 at 12:02 AM

    Hello Bekka, Neil and Ollie!

    We are writing to let you know we are thinking of you and keeping you in our prayers.

    How was the SMA conference downtown? I wanted to mention, we have a respiratory therapist neighbor and longtime family friend, Robin Baker, who is close by. If it might be helpful or useful at all we could arrange for her to meet you and Ollie? It's an idea, to see if she could help out professionaly in any way. She's a great nurse and friend.

    Dear Ollie's photos are amazing, and his blue eyes do speak volumes. This is the important stuff in life. Ollie's smile, strength and courage teach us to soak up life, moment by moment.

    We hope you have a great 4th, and 11 mo. bday coming up for Ollie!

    Your backyard neighbors,
    Linda and Manzoor
    lindacheema@yahoo.com

    ReplyDelete

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