Saturday, June 6, 2009
Cincinnati Bound
Families of SMA is having its 25th Anniversary Families and Professionals Conference this year. It will be held in Cincinnati from Thursday, June 18th through Sunday, June 21st (which is Father's Day). I'm excited that Ollie's Auntie Amanda and I are going to be there. I hope to come home with lots more info and lots of great ideas. =)
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Hi Ollie & Family:
ReplyDeleteMy name is MJ Purk. My real name is Margaret. I am 21 years old and am a junior in college. I have SMA type 1+, meaning I don't fit in any category. I got your blog address from Mack's blog. I'm sorry to hear about Ollie being diagnosed with SMA. I loved looking at his pictures. He is adorable!
I have an organization that sends blankets to kids with SMA and would love to send one to Ollie. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out http://www.our-sma-angels.com/b4sma/
Should you decide that you would like to receive a blanket, please e-mail me at b4sma_kids@yahoo.com with your post address or we can bring one to Cincinnati with us. All we ask in return is a picture of Ollie with his blanket covering him. Also, if I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time at b4sma_kids@yahoo.com. I am not afraid to answer any questions you might have. Big hugs to you and your family.
MJ
www.our-sma-angels.com/b4sma
www.caringbridge.org/visit/mjpurk
b4sma_kids@yahoo.com
Hi MJ. Thanks for the Ollie compliments. He is the light of our life and is such an adorable little guy.
ReplyDeleteThose quilts are fantastic! We'll let you save them up for another cute little fella as Ollie has received an amazing number of handmade quilts himself.
Thanks so much for reading the blog and posting we appreciate each and every comment!