Good Evening Friends and Family.
The last few days have been interesting for ourselves and for the twins. Both are continuing to grow, albeit with some challenges. If measurements are correct, Penelope is now up to 1580g (3lb 8oz) while Isaak is at 1460g (3lb 5oz). Little girl is eating like a champ and is doing well during "practice" feeding with Bekka. Once she no longer has an OG tube, I don't think there will be a problem with oral feeds. She had a bit of an apnea scare that required neo-puff assistance today, but it was short and she's been doing great since.
Isaak is gaining weight, but is also having additional difficulties the last few days. We do not know if it's due to his anemia or something else, but the volume of fluid out of his ostomy has increased and has also been less processed. All involved hope this is a very temporary development and that he is not going to have further complications in an already complex young life. He was switched to a formula called EleCare this afternoon instead of breast milk in hope that it is more easily digested. If this is due to anemia, let's hope the Epo kicks in sooner rather than later. He's also had to have his flow rate turned up on VapoTherm. In this case, our anemia nemesis is definitely to blame.
In other news (literally!), Bekka and I were interviewed by local station WRAL today. They were doing a story to highlight Father's Day and the hospital ICN staff recommended us for an interview. We discussed the loss of Oliver and the joy of having the twins. Renee Chou did a fantastic job and it really is a nice piece. Please enjoy below (and maximize the image for near-HD quality!). Let me tell you they are photogenic little guys and there are beautiful shots of Ollie.
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hello mastin family... i do not recall how i stumbled on your blog... i have not lost a child, i have not had preemies and the closest experience i have with degenerative illness is that my children's father has huntington's disease.
ReplyDeletethat being said, i have been following your story since shortly before the twins' birth. this news piece was the most moving thing i have seen in a long time. i am so terribly sorry for the loss of ollie. i cannot imagine the pain you experience every day. however, i want to congratulate you on the beautiful double blessing of penny and isaak.
neil, i am so sorry for your loss but i truly hope you have a wonderful father's day tomorrow. you are both very special people and i wish you all the best.
Loved seeing this video. Happy Father's Day!
ReplyDeleteLeeann
Neil and Bekka,
ReplyDeleteHey, we missed you guys last weekend. It will be great when we have your whole family at these family events again. Can't wait to have two babies to play with at once. Happy Father's Day, Neil.
Tom and Kathy
You two are amazing people. The video was beautiful and the twins look wonderful. Happy Fathers Day!
ReplyDeleteIvey's in Tampa
Neil....
ReplyDeleteYour Dad and I were talking about how special it was to be with you over the past weekend and to celebrate Father's Day with you, Bekka and the twins. Since the day you were born, we've been so very proud of you and thankful to have you as our son. You are a wonderful son, husband, and father. Oliver, Penny and Isaak have been so very blessed to have you as their Daddy. We love you....Mom and Dad