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Thursday, July 9, 2009
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So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday.
How Can You Help?
Click on me for cute pictures!
Ollie's Tale
Ollie's Tale is a work in progress. We promise to update it as frequently as we can. Sometimes that may be daily or even hourly. Other times it may be weekly or even monthly. So, please be patient with us and check back often.
You can contact us at:
olliestale (at) gmail (dot) com
You can contact us at:
olliestale (at) gmail (dot) com
Swedish Proverbs
"Shared joy is a double joy; shared sorrow is half a sorrow."
"Friendship doubles our joy and divides our grief."
Blog Archive
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2009
(100)
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July
(20)
- An Update from the Homefront
- Great News for Family
- Mama's Red Cast
- Grandma's here!
- Spa Day for Ollie
- Ollie's New 'do
- Good mornin'!
- Home Again
- X-ray #2
- Ollie likes Daddy's phone
- ER X-rays
- Ollie's in the ER again
- Ollie is at Home
- Ouchie!
- Ollie with Bipap Mask
- Ollie without Bipap Mask
- Slideshow of Professional Portraits
- Ollie's in the PICU
- Of ER visits and Mommy's Broken Elbow
- Pictures!
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▼
July
(20)
SMA Sites
- Standard of Care in Spinal Muscular Atrophy
- University of Utah - Dr. Swoboda
- Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy
- Families of Spinal Muscular Atrophy
- Fight SMA
- SMA Foundation
- Angel Baby Foundation
- Claire Altman Heine Foundation
- The Jacob Isaac Rappoport Foundation
- The Jeffery Journey
- Muscular Dystrophy Association
Posts
Oh no, poor baby!
ReplyDeleteEven with a blister, he's got the sweetest face! I could just pinch those cheeks...
ReplyDeleteSending prayers for your precious little son. I love the slide show of professional pics and the song was perfect. See you on SMASPACE. HUGS
ReplyDeleteLinda Rosas, proud grandma to Courtney Brooke (SMA-1) age: 6 miracle years and Kendall Taylor (SMA free) age:4 TEXAS
www.our-sma-angels.com/CourtneyBrooke http://www.caringbridge.org/visit/princesscourtney
It's amazing what can truly happen, how your life can be so grand; when you give up trying on your own, and let an angel hold your hand."
-- Author Unknown