Today (yesterday at this point) has been long and hard for Ollie, Mommy and Daddy. Ollie had a difficult day with congestion and breathing, and Bekka and Shelby (Ollie's nurse today) had a long long day trying to keep his sats up. CoughAssist, Suction, nebulizer, CoughAssist, more suction, more CoughAssist. Even with oxygen they were having a very hard time keeping his numbers where they needed to be.
Bekka called me at 3pm and told me I should probably come home and they were calling the EMS (for the 2nd time in 4 days!). This time we made the decision to go to Duke. He stayed pretty stable on O2 and EMS whisked him away to Duke ER.
After consulting with his pulmonologist, the decision was made to admit him to the hospital. He is in the Pediactric Intensive Care Unit tonight. They have him hooked up to a bi-pap machine in the hopes that oxygen will not be necessary during the night. He is expected to be in the hospital for several days (Monday was thrown around as a goal to go home). Given the number of episodes he has experienced recently despite our very diligent secretion management, they really want to observe and monitor the little guy for several days. He may have had an acute virus or he may just be experiencing a more rapid progression of SMA symptoms.
We thank you for your continued thoughts and prayers as these last few days have really struck home that Bekka and I have important decisions to make.
Not a single one of them is easy. Not a single one of them is pleasant.
Wednesday, July 8, 2009
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We are all here for you three. Make a call for anything and it will be there.
ReplyDeletewhat words could i say?
ReplyDeleteonly that i am among those keeping you in my thoughts.
just wanted to let you know that our thoughts and prayers are with you.
ReplyDeleteif we can do anything, please let me know.