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Monday, July 20, 2009
Good mornin'!
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So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday.
How Can You Help?
Click on me for cute pictures!
Ollie's Tale
Ollie's Tale is a work in progress. We promise to update it as frequently as we can. Sometimes that may be daily or even hourly. Other times it may be weekly or even monthly. So, please be patient with us and check back often.
You can contact us at:
olliestale (at) gmail (dot) com
You can contact us at:
olliestale (at) gmail (dot) com
Swedish Proverbs
"Shared joy is a double joy; shared sorrow is half a sorrow."
"Friendship doubles our joy and divides our grief."
Blog Archive
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2009
(100)
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July
(20)
- An Update from the Homefront
- Great News for Family
- Mama's Red Cast
- Grandma's here!
- Spa Day for Ollie
- Ollie's New 'do
- Good mornin'!
- Home Again
- X-ray #2
- Ollie likes Daddy's phone
- ER X-rays
- Ollie's in the ER again
- Ollie is at Home
- Ouchie!
- Ollie with Bipap Mask
- Ollie without Bipap Mask
- Slideshow of Professional Portraits
- Ollie's in the PICU
- Of ER visits and Mommy's Broken Elbow
- Pictures!
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July
(20)
SMA Sites
- Standard of Care in Spinal Muscular Atrophy
- University of Utah - Dr. Swoboda
- Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy
- Families of Spinal Muscular Atrophy
- Fight SMA
- SMA Foundation
- Angel Baby Foundation
- Claire Altman Heine Foundation
- The Jacob Isaac Rappoport Foundation
- The Jeffery Journey
- Muscular Dystrophy Association
Posts
Yea! Thanks for the happy pic.
ReplyDeleteWe are praying for all of you.
ReplyDeleteIt is so good to see that sweet smile that i so enjoy seeing. Thank you so much for keep all of us updated on that little man that so many of us have come to love and care for.
Just noticed the gauze on Ollie's ear. If you buy a sponge hair roller, take the sponge off and put it around the tubing it makes a nice padding for his ear to decrease irritation. Hope it helps!
ReplyDeleteSo glad to hear Ollie is home and comfy! Great photo, thanks for sharing! We are thinking of you! ((HUGS))
ReplyDeleteWe're thinking of all of you! Thanks for keeping this updated even with so much going on. You are indeed very, very, very loved!
ReplyDelete