Imagine if soon after your first child was born you were told he or she had an incurable genetic disease which would undoubtedly take his or her life before their 2nd birthday. My friends, Neil and Rebekka Mastin who reside here in Raleigh, are faced with this tragic reality. Their son, Oliver was diagnosed at two months with Spinal Muscular Atrophy (SMA), Type I, the most aggressive form of this genetic disease. Translation: “Ollie”, as his friends and family have come to know him, at the age of eight months has been given no more than a year to live. The slow progression of muscle degeneration that began in his legs when he was two months is quickly overtaking him, and he will eventually suffer respiratory failure.
I would like you to consider giving to a fund that has been established to help pay for the monthly use of critical and expensive medical equipment that will make Ollie comfortable in his final months. Ollie’s parents are working people just like you and me. His Mom’s insurance coverage for him has been salvaged as she continues to work part-time. However, the insurance has certain restrictions that disallow coverage for certain medical expenses.
A small group of Neil and Rebekka’s friends and neighbors have created this communication so that Ollie’s short life can be celebrated rather than endured. Time is expiring and the needs are acute. Please consider giving something today. Whatever amount you can give will be appreciated. What matters most is that we send a clear message of love and hope to Ollie. As he struggles to take his final tiny breaths of life, we want his parents to feel relieved of any unnecessary financial burdens and be able to comfort him in so much as is possible.
Thank you so much in advance for your gift. You may send checks for deposit through the mail or deposit checks or cash in person at any State Employees' Credit Union.
State Employees' Credit Union
6320 Capital Blvd., Ste 101 Raleigh, NC 27616
Phone: (919) 871-0450 Fax: (919) 790-0305
Please make checks payable to Oliver Mastin.
The Credit Union will ensure that the check is deposited into the proper account.
To learn more about SMA visit:
http://www.curesma.org
To help in other ways, contact Robin Banker at
robinbanker@gmail.com
And continue to follow Ollie’s story at
http://olliestale.blogspot.com/
“Hearing a diagnosis of something like SMA is beyond devastating. Life becomes compressed and literally day to day. Every little milestone is magnified a thousand times and every little cough a million. Lucky for us, Oliver has a million candle-power smile that turns on at the drop of a hat that can light up anyone's bad day. Maybe it's because his time on earth will be short, but he seems to burn all the brighter for it.”
Neil Mastin
Neil and I intend to use these funds to help cover Oliver's medical expenses including such things as doctor's visits, durable medical equipment, and medical supplies. Any additional funds will be donated to Families of Spinal Muscular Atrophy, the Muscular Dystrophy Association, or Duke Children's Hospital and Health Center.
Thank you again!
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