Tuesday, July 13, 2010
The only constant is change...
Isaak's surgery has been moved up. We're on our way to the hospital now. He'll likely go back around 9:30-ish.
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So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday.
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Ollie's Tale
Ollie's Tale is a work in progress. We promise to update it as frequently as we can. Sometimes that may be daily or even hourly. Other times it may be weekly or even monthly. So, please be patient with us and check back often.
You can contact us at:
olliestale (at) gmail (dot) com
You can contact us at:
olliestale (at) gmail (dot) com
Swedish Proverbs
"Shared joy is a double joy; shared sorrow is half a sorrow."
"Friendship doubles our joy and divides our grief."
Blog Archive
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2010
(96)
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July
(13)
- A Weekend with Penny and an Update on Isaak
- Penny goes Home! (and Isaak has a scare)
- Exciting Day
- The Latest and Greatest from the Land of Light Blue
- Penny and Isaak - Together Again (again)
- Quick Update
- Isaak's Follow-up Surgery Open Post
- The only constant is change...
- Surgery Day is Here
- Not Quite According to Plan
- Improvements and Departures
- Two Things
- My Son is a Vampire and my Daughter Eats via her S...
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July
(13)
SMA Sites
- Standard of Care in Spinal Muscular Atrophy
- University of Utah - Dr. Swoboda
- Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy
- Families of Spinal Muscular Atrophy
- Fight SMA
- SMA Foundation
- Angel Baby Foundation
- Claire Altman Heine Foundation
- The Jacob Isaac Rappoport Foundation
- The Jeffery Journey
- Muscular Dystrophy Association
Posts
I'll have my fingers crossed all day.
ReplyDeletePraying for little man!
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