"Honor Our SMA Angels"
Join with families and SMA organizations around the country by lighting a candle at sunset on the second Saturday in August to remember and honor those who have lost their battle with SMA.
I hope that each of you will join us in lighting a candle for Ollie today (Saturday, August 8, 2009). Thank you for remembering our beautiful baby boy.
From the Families of SMA website:
August is National Spinal Muscular Atrophy (SMA) Awareness month. We are making great progress in developing potential treatments and a cure for this disease. This is the time to come together with your communities to raise knowledge of the disease to new heights.
Awareness is the beginning of change. The majority of people do not know about SMA until it directly affects their family. Even the letters SMA don’t ring a bell with many doctors, nurses and community members. This is where you can help.
What you can do:
Plan to get involved and spread awareness of Spinal Muscular Atrophy with the ideas and materials here and here.
(You can download these materials or call the FSMA office at 800-886-1762 for printed materials.)Grass-roots Efforts are the foundation of this campaign.
Whether organizing bake or craft sales or setting up candlelight vigils to honor the children who have died, there are many ways to take proactive steps to help Families of SMA raise awareness to help find a treatment and cure.
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