Wednesday, August 3, 2011

Today

Has been a pretty good day.

It's been a long time since we've posted about Ollie, but we've gotten emails and phone calls from all over and want to say thank you.

Thanks for loving our little guy and thanks for loving us. We were talking recently and remarked to each other how August 3's approach didn't seem as terrible as we thought it would. A lot of healing has gone on in the last year, much of that thanks to two little ones that are our main focus in life.

There is a sense of something "missing" today. Of course, we'd love for Oliver to be here with us and playing with his brother and sister. In a way, he is. All of the little reminders are there, from photos, to notes, to toys that Penny and Isaak love as much as he did.

He was a special little guy that touched a lot of people and we like to think he made us better parents, preparing us for double trouble. You don't want to project too much on a 1 year old child, but Penny seems to have captured much of Ollie's mischievousness and Isaak his pure joy in life. Perhaps there was too much Ollie to be contained in just one vessel.

Ollie's Tale may no longer have him as a main character, but it still goes on.

Today really isn't a sad day. It's a good one.

Miss you buddy!

5 comments:

  1. "Perhaps there was too much Ollie to be contained in just one vessel."

    I LOVE that thought!!!!!!!

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  2. I started reading your blog perhaps two years ago? I can't quite remember. But I do remember being so taken with the pictures of Ollie, and feeling for you all. It brought back memories of my colleague who lost her nephew to SMA. And then the early delivery of your twins. Anyway, this is a clumsy way of saying that a perfect stranger thinks of your little boy; and clicks every now and then to see pictures of his brother and sister, and just wishes the family well.

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  3. Anon - Thank you for visiting. To know that perfect stranger is moved by our story means a lot. That's why it's out there!

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  4. I am also a perfect stranger to your family but heard about you through my niece who does know you. I admire the way you've tackled each and every hurdle of your life. I check often for updates on the twins and also think of Ollie. He was such a beautiful boy with so much soul in his eyes. I'm glad his sister and brother share some of his personality traits.

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  5. Hi, I just read the beautiful guest post about Getty. So lovely and full of love.

    The reference to Tell 5 reminded me that before I decided to have a baby, I told my dr I wanted all the genetic testing done that I could reasonably have done; and they did a bunch. But it was only when I was 20 weeks pregnant that my OB told me about the blood test for SMA. It made my angry they hadn't mentioned the possibility beforehand, particularly when I had specifically asked about what testing I could get before I was pregnant. And I think the only reason they brought it up at that point was because some company had printed up a brochure. Anyway, I like the idea of telling 5 people about it so that those 5 can get tested or perhaps contribute to a charity.

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