Robinul to the Rescue (so far)

This past week we began treating Oliver with Robinul in the hope of controlling his increasingly high secretion volume as we had gotten to the point of hourly suctioning on bad days. Robinul is a very powerful drug with numerous side-effects and some patients tolerate it better than others. In some SMA cases, you get only side-effects and no secretion reduction.

It's normally in tablet or inject-able form - needless to see, we aren't giving the poor little guy twice daily injections! Instead, a higher dose of the inject-able form is given via the g-tube.

So far (fingers crossed), he has tolerated treatment well. His secretion volume is way down, and while mucus is thicker, it's not so thick that cough assist and suction hasn't been able to remove it. In addition, he's not been constipated (one of the bigger worries).

We hope this response continues as it's greatly improved Ollie's (and mommy and daddy's) quality of life in a short time frame.