"Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy"

I just finished reading the new Breathing Basics brochure from FSMA. I highly recommend reading it. It outlines the respiratory challenges faced by a child with SMA. And it discusses the difficult decisions that parents must make in caring for their child. I plan on keeping a couple of copies handy to give to doctors that are unfamiliar with SMA - especially in emergencies.

And, after I read it, I pulled out the pulse ox and hooked Ollie up to it.

His heart rate is between 100 and 140. His oxygen saturations are between 96 and 100. In other words, he's breathing pretty well at the moment.